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Registry data to OMOP CDM Work Group


#1

Good morning fellow OMOPers!

I’m involved in a project that wants to leverage the use of real world data from European and other international Multiple Sclerosis registries by transforming the data to OMOP CDM.
Since the registries are heterogeneous in their data (data types, format, export files, variables etc.), this is a huge task to tackle. One reason to go with the OHDSI approach was the big, supportive community behind it. That’s why I’m reaching out to you now.

I’m looking for fellow data scientists, researcher, developer, doctors, nurses, students - whoever! - who would like to form a work group concerning registry data and its transformation to OMOP CDM. The use case of the registry is not important.

Feel free to contact me, if you’re interested!
Cheers, Tina


(Vojtech Huser) #2

Very interesting a nice topic.

The clinical study workgroup was meant to subsume observational studies. (including a registry)

Many folks wanted to truly be just clinical trial WG. I think that group should tackle many studies. Even ClinicalTrials.gov takes registries as the study type…


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