As a pet project, I’m researching the best practices for developing standard vocabularies for wearables and other telemetry data. I know that the [Pistoia Alliance is pushing for more collaboration to develop device standards]. I’m not sure if there are folks in this community directly plugged into this (@keesvanbochove).
Has anyone built their own CDM extensions to house these kind of data? (@Patrick_Ryan @Frank @jon_duke @Christian_Reich @Rijnbeek @nigam ) It know it’s the wild west in terms of standardization. Looking for any and all war stories to collate and build a robust point of view. I also remember seeing @JackPo mention some work linking these data to other EHR data but haven’t seen other recent discussions.
If anyone has any papers they’ve read, send them my way. I’m just in an information gathering stage at present. My ambitious, longer term goal would be to try to create a strong enough point of view to inform a proposal to the CDM working group but I’m nowhere near that point. : http://www.clinicalinformaticsnews.com/2017/05/03/come-together-the-pistoia-alliances-push-for-wearable-device-standards-in-clinical-trials.aspx