I am involved in the EHDEN project representing the National Institute for Health Care and Excellence (NICE) in England.
We are developing use cases to examine the usefulness of the OMOP-CDM in health technology assessment (i.e. relative effectiveness and cost-effectiveness analysis).
One of our use cases is in advanced prostate cancer. Real world data is particularly valuable in oncology research for extrapolating survival from the end of the trial to patients death, and from surrogate endpoints (e.g. progression free survival) to mortality.
We are trying to identify appropriate data sources that have been OMOPped for this work.
We require, at a minimum, individual-level data on cancer incidence, death, and year of birth. We would ideally also have information on disease progression, treatments received, and other patient characteristics. The data set must have long-term follow-up on patients.
The external data can come from a variety of sources including cohort studies, disease registries, or administrative databases.
If you are aware of an appropriate data source (or sources) please let me know.