I have received several questions, including from our friends at the EMA and FDA, about the recency of databases within the OHDSI network. The basic thing on everyone’s mind: how long will we have to wait until data partners begin to capture Covid-19 positive cases and associated outcomes? During our OHDSI study-a-thon this week, we will be focused on answering research questions that can be addressed through retrospective analysis of existing data, but we’ll also be designing analysis packages to be prepared to execute studies as Covid-19 data accumulate.
If you have access to a patient-level observational dataset, please complete the following survey: https://forms.gle/cyz3ZXHRsDozNUREA.
The survey asks for basic information about you and the database you have access to:
- database name
- geography (country, region)
- data type (e.g. claims, EHR, registries)
- does it capture outpatient care?
- does it capture inpatient hospital admission?
then it asks a couple questions about the current dataset you currently have access to:
- Date when data was last prepared for analysis
- Date when the data starts (e.g. first observation)
- Date of the most recent data (.e.g. last observation)
- OMOP CDM version
- OMOP vocabulary version
and a few questions about your future access to data:
- What is your refresh cycle of the source data (ex. daily, weekly, monthly, annually)?
- What is the expected lag between the next refresh data and the data of the latest observation?
- When will the next data refresh be completed?
- What will be the month/year of the last observation in the next refresh?
Your timely response is greatly appreciated. This information will be used to inform our OHDSI study planning activities and will be shared with public health officials on request, but does not represent any expectation or requirement for participation in any future activities.