Many collaboratives have data use agreement forms that are used when data is exchanged across institutions. These forms are useful for both the researcher conducting the study and also the data owner/holder.
My open question for the OHDSI community is: should research studies conducted within the OHDSI collaborative have data use agreement forms? This can be especially important when obtaining data from within the USA and also from international institutions where data use criteria and laws may differ.
My two main discussion questions for OHDSI are:
- necessity of a data use agreement (is it necessary, is it helpful, would it make you as a data owner more at ease with sharing data?, etc.)
- structure of a data use agreement
Input greatly appreciated!!!