We are building a data commons for food allergy research. The current terminologies (ICD, SNOMED, DO) have lots of holes in this area. We are finding that the normal diagnosis tree does not fit food allergy well. We probably don’t want to create a hundred more food allergy diagnoses. Rather, modeling food allergies as a simple food allergy concept with the trigger compound. See early draft Food Allergy Tree Lucidchart.pdf (151.4 KB). We also cannot find any terminology that separates the food at a fine enough detail. For example, “Egg cooked into a matrix” is immunologically differently from “incompletely cooked egg”.
We could use some advice on OMOP ontology extensions to handle food allergies. Has anyone had to deal with anything similar in the past and could offer some advice?