Goal13: every disease will have natural history summary characterization

[Vojtech_Huser (Vojtech (Vojta) Huser)]

I am hoping to work on goal 13 from this list of goals

2034 (or sooner) targets / goals

I really like the goals outlined in @Patrick_Ryan closing letter in https://www.ohdsi.org/wp-content/uploads/2024/10/OurJourney2024.pdf (page 114) (and the recent poll) Pasting them below as non PDF nicer text. And adding numbers to them. Perhaps a new workgroups or existing workgroups can take on some of those goals. Maybe even have thread on the forum for each goal to get some discussion started. I personally would like to work on few diseases for goal 13 (every disease: natural history …

Goal 13 is:

13. Every disease will have a comprehensive real-world evidence summary that characterizes natural history and treatment pathways across the globe so we can understand patient heterogeneity, promote health equity, and recognize unmet medical needs.

If you also interested in this topic, please comment here.
The goal is to design R code that constructs cohorts (or uses phenotype library) and runs some goal13.R code on each phenotype.

Perhaps use AI or other knowledge bases to find events (Px, Rx, Meas) associated with a given disease.

If that overlaps with your PhD or other research interest, please feel free to comment.

The code may have be developed for AoU and not using any of the fancy stuff because the AoU workbench lacks connectionDetails.

See more here: Can OHDSI tools be usable in All of US data?