Hello all,
I’m in the process of creating a research database for all breast cancer cases diagnosed and treated in our hospital. I want the database to follow the OMOP CDM. In parallel, we also have an internal cancer registry from which I will transfer a lot of structured data, which does not follow the OMOP CDM.
One of the variables in the registry I struggle to transform to OMOP - although it seems rather simple - is cancer-related death, which could be either due to the cancer itself or due to the treatment (ideally we should be able to encode whether it is ‘cancer related’, ‘cancer treatment related’, or if we don’t have the details: ‘cancer or cancer treatment related’).
I do not see how I could encode this. I can use the condition occurence when the cancer itself is the cause of death, and there are some concepts like ‘death due to chemotherapy toxicity’, but these are too detailed and do not cover for example immunotherapy or, as is often the case, the combination of all therapies which caused death.
Use case and why we would want to encode this information: disease-specific survival analysis.
If anyone has any ideas, I’m all ears! Did I miss something completely obvious?
Thank you!
Jennifer
It’s a very complex disease process which is influenced by genetics, environment, lifestyle, age, treatments or lack of treatments, a person’s health and other variables many of which are unknown at this time. And the source data representing a person’s journey are even more complex. You should join the