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Call for collaborators: inflammatory bowel disease (IBD) phenotyping

(cyanover) #1

Hi All,

We are currently launching, together with leading IBD clinicians, a comprehensive IBD research studying multiple aspects of the disease, including risk factors, prediction of disease trajectory, and the effect of various interventions. As the first and significant step, however, we’d like to launch a phenotyping effort for IBD (and its related diseases: ulcerative colitis and Crohn’s disease) and globally characterize IBD patients. @Patrick_Ryan has kindly agreed to join and mentor us in this project. We would love for all of you who are interested in IBD and/or disease phenotyping to join us. Please let me know if you are interested!


(Mandar) #2

@cyanover I would love to hear about your methodology and follow your progress. All the best!

(Katy Sadowski) #3

I am interested!

Unfortunately I might not be able to contribute as much as a traditional collaborator due to the narrow data use agreements for my institution’s database - but we’ve got a large number of community GI practices in our network and I have experience working with IBD EHR data, so hopefully there’s some way I can help out.

It’d be my first phenotyping collaboration, too, so I’m excited to learn :slight_smile:

(Leilei Zhu (Clinical Data Standards Lead, UCLH, UK)) #4

I am interested. I have worked a lot with the IBD team in my hospital to see how to use our EHR and data standards to collect patient data and link with the national IBD registry.

(Gregory Klebanov) #5

Hi - yes, I would interested!

(Nirav P) #6

Hello, new to the OHDSI community and interested in helping on this project.

(Anna) #7

I have interest too. My background is in health economics and outcome research, dealing with health data almost 15 years, including claim data, EHR data, registry data, clinical data and many others in the US and EU5.

IBD is one of my research area, including both Ulcerative Colitis and Chron’s disease.

(Niroj Bhandari) #8

Hi I am a medical student and training researcher. Have done most of my work in epidemiological modeling and statistical analysis. But I am highly interested in inflammatory conditions and want to collaborate in this effort

(Nicole Pratt) #9

Hi Chen, I would also be very interested to join this group.