Looking for suggestions on coding Biphenotypic sinonasal sarcoma. This is a newer classification in the World Health Organization Classification of Head and Neck Tumours and not in the ICD-O-3 online version as of yet.
Do you have data with this condition?
We are asking did the patient/subject have this cancer.
But you don’t have that coded in the system, do you?
Correct. We want to be able to code it with a standard vs a custom map. I guess we will have to since it is not in the ICD-O-3 version used now in OHDSI/WHO
Well, you will need to create a custom concept with a concept_id>2 Billion. There, you can go wild and put anything you can’t find in the standard. Because the standards ICDO or ICD10 (both from WHO) don’t contain it.