Accessing OHDSI network hospitals for Machine learning grant

[krfeeney (Kristin Kostka, MPH)]

@nbareis

I also heard there will be a meeting the coming Monday (9/16) about setting up a psychiatry network. Did I understand that correctly?

You’re correct! @mvanzandt and team are coordinating a Face-to-Face workgroup meeting after the main Symposium. Details here: Psychiatry Working Group Creation - F2F at the US Symposium - #3 by krfeeney. Mui can forward you the dial-in if you are not going to be in person.

@nbareis

Also, since I’m totally new to all of this, can you direct me to the instructions on how to make this like the other network studies? Do you have a specific form the protocol should take?

Yes, there’s a few chapters in the Book of OHDSI (Study Steps and Network Research) that can help provide some frame of reference to the overall process. Study Steps is the general “how I run a study at my institution”. Network Research talks about all the considerations unique to running a network study.

Protocols are an important part of the process. Here’s an example of a few well written protocols:

1. The 2019 US Symposium Women of OHDSI Network Study (led by @MauraBeaton)
2. Concept Prevalence (led by @aostropolets)

You’ll notice there’s different levels of detail. Your study is more similar to #1 but I share Anna’s just to show that it can be an adapted format.

@nbareis

I was hoping to possibly request data from another OHDSI center.

One big nuance here: OHDSI network studies do not share patient-level data. In other words, patient level data from different sites is never pooled in a central environment. As sites, we map our data to the OMOP Common Data Model. When we run network studies, we create study code that are “OMOP compliant” – meaning they can run on any data mapped to the OMOP CDM that upholds standard OMOP conventions. Study code packages create results files designed to be aggregate results (e.g. summary statistics, point-estimates, diagnostic plots, etc.) and do not share patient-level information.

The good news is you’ve got a whole network of friends who regularly do this research!

@nbareis

I know this would involve an agreement and likely IRB for human subjects concerns etc,

When you write a study in the OHDSI framework, you will find many institutions have expedited reviews for these projects. As @Christian_Reich jokes, “The damage is already done to the person.” These are low-risk retrospective studies. The CDM is designed to be de-identified and all data are maintained locally which helps with many of the privacy rules you have to uphold. It will be at the discretion of each participating institution what other agreements are needed, some may require data use agreements but not all.

@nbareis

it would be really helpful to have the information from a location other than New York. I also know this might be impossible, but thought I would ask.

Not impossible!! You can get information from locations other than New York.

@nbareis

Finally, is there a place I can go which has the list of all hospital systems in the OHDSI network?

Here is the 2019 OHDSI Data Network List, freshly updated for the 2019 US Symposium on Monday.

If you would like to set-up time to discuss your study, I would be happy to find time. I’m at the US Symposium this weekend. How’s late next week (Thurs or Fri)? Send me an email (kristin.kostka@iqvia.com).