, please.
Organic statistics happens when an intuitive and mechanistic understanding of statistical tools grows inside you so that you don’t ever feel like you are using a recipe. Happy to elaborate. thanks for asking!
Hi! I’m Doug Manuel I’m a distinguished professor at the University of Ottawa. I hold positions at Statistics Canada and ICES. See video. I’ve been working with real-world health data for over 20 years, mostly in Canada.
We’ve got a few initiatives in Canada to increase the use and access of health data that seem well-aligned to OHDSI. There is a newly announced National Data Platform to “catalyze more multi-jurisdictional research”. (article in CMAJ - not open access) There is also the International Population Data Linkage Network (IPDLN) that seeks to connect similar initiatives. IPDLN supports a journal.
I have a personal interest in open science and open software to improve research using routinely collected health data. OHDSI is a fantastic example.
Hi everybody,
I am PhD. Catalina Martínez Costa, working in the past at the Medical University of Graz in Austria and recently at the University of Murcia in Spain. My research area focuses mainly on healthcare information representation, semantic interoperability and biomedical terminologies / ontologies. Currently I lead the work regarding data harmonization and integration in the Precise4Q H2020 project (https://precise4q.eu). The project faces two main challenges: (1) building predictive models to provide patients with personalized interventions at the four stroke phases: prevention, acute treatment, rehabilitation, reintegration; and (2) the harmonization and integration of semantically and syntactically heterogeneous datasets in 6 different languages (including free text). We do not want to implement an isolated solution and thus besides our data representation we would like to provide a mapping to the OMOP CDM. The project, as I mentioned, has stroke as clinical focus. Could you advise me on how we can learn from the community and how we could contribute to it?
Thanks!
Hi Catalina,
Happy to connect with you. I also have a background of ontology development, and thinking along the similar idea with ontology based data models. Specifically, leveraging OMOP for medical device area. There are a lot of medical devices used for stroke prevention or treatment. I am also new to the OHDSI community. I’d like to join you to see how you will map to the OMOP CDM.
Thanks,
Asiyah
@cmc:
Welcome to the family.
Here is what you can do:
- Create data assets in OMOP that captures the four stroke phases. Many of the existing data don’t have the timely resolution of the acute phase. The community will help you do that (like @AsiyahFDA). It’s easy to get help in the CDM Builder Forum.
- Call for a Network Study. Define the question, create the standard script, publish it, call for participants, have it run, aggregate the results and publish. There is a whole Study Nurturing Group dedicated to helping folks get over the hurdles, which is run by @SCYou.
- In particular, there is a Working Group for Patient-level Predictions. They can also help you with methodological challenges. They also wrote a chapter in the Book of OHDSI about it.
- Come to our Symposia in various parts of the world and bring your friends.
Hello, everyone, my name is Jing Yuan, I am a faculty member at Rutgers University. My background is health outcomes research. I am interested in using real-world data evaluating clinical and economic outcomes of new drugs and technologies. I look forward for our collaborations.
Hello everyone.
I am a volunteer professional in a health unit in Marília, state of São Paulo, Brazil.
We have poorly structured data from patients from over 80 municipalities.
We aim to structure this data, generating statistics that allow us to improve service queues, as well as using machine learning algorithms to improve the health situation in our region.
I hope to actively collaborate with the community!
Hi Everyone! I am a front-end developer from data4life. Our team has been involved in developing an analytical tool which focuses on cohort creation and visualizations to provide medical insights. Recently, we have started on exploring OMOP CDM and specifically interested in the usage of Atlas tool.
We are very much eager to contribute to the tool by proposing some enhancements on the User Experience (UX) aspect which I believe will add some value to the users and the tool as well.
Looking forward to hear from you all.
Hello all! I am a postdoc research fellow in the Dept of Epi at Columbia University, and my clinical background is as a pediatric oncology nurse practitioner (still practicing). I am very interested in data quality and standardization for oncology-specific concepts/terms, and my dissertation partially focused on the challenges in data quality around cancer-related symptoms for children, adolescents and young adults receiving cancer treatment (am working on publishing the manuscript). My current research is focusing on opioid prescribing for post-operative pain in children/AYA with cancer.
I’m interested in getting more involved in EHR abstraction, specifically within the oncology working group @rimma @shilparatwani @Andrew @Michael and specifically around pediatric/AYA cancers. I look forward to hearing more, and was really excited to hear yesterday’s presentation and future directions!
Hi Melissa,
I am a postdoctoral scientist in biomedical informatics at Columbia University and would be happy to help you anytime!
Best,
Matt
Thanks Matt–that would be great! I am meeting with Ray next week, and perhaps we can set up a time to talk after that? Looking forward to meeting/working with you!
Hello everyone,
My name is Kavee. I’m a nephrologist from Thailand (with interest in data analysis). I’ve just read the LEGEND-HTN study (Lancet 2019) and found it very interesting, so I follow the link to here.
HI, My name is Yoshihiro. I am a health care information technologist in Japan hospital. I also perform as pharmacist. I am happy for joining this group.
Hi everyone ! my name his Hayim I am a developer in a healthcare startup that build a platform to manage patient engagement activities (with the help of healthcare billing records among other things), I’ll try my best to contribute to the software issues (especially the R related stuff).
Cheers,
Thanks for the reply Christian!
We will start by mapping our datasets to OMOP CDM and will ask to the CDM Builder Forum when needed.
In the future we might meet at an OHDSI Symposia.
Cheers,
Cati
Hi everyone! I am Nadirah a UX designer from healthcare company data4life. Our team is exploring OMOP CDM and we are interested to know the community and learn more on the usage of Atlas tool and users. I am also looking to contribute and improve the user experience.
Hi,
I am Karthik. I am an interventional cardiologist and researcher at Yale. OHDSI seems like a phenomenal platform to generate great insights. Kudos to everyone involved.
Best.
Hi everyone!
My name is Karla and I work at the Department of Science and Technology of the Brazilian Ministry of Health in the Clinical Research field. I’m very interested in how to collect and organize data to improve public health in my country. I’m also interested in learning about real-world data and real-world evidence.
Hi, My name is Kafi. I am a recent graduate of Health Economics Outcomes Research. Prior to going back to school. I worked as a pharmacist managing an independent pharmacy which was sold last year. I came across OHDSI from a HEOR meetup. I am looking to work In health care quality and also contribute in a meaningful way to this forum.
I like to read and watch movies in my free time.