Hello,
My name is Michael Gurley. I am a Programmer/Analyst at the Northwestern Center for Data Science and Informatics (CDSI). I have worked on a variety of clinical research/quality databases/registries. Currently, I am developing a clinical data repository for the Northwestern Prostate SPORE. I am building the data repository as a generic system with the hope to be able to apply the platform to any disease area. I have chosen to use the OHDSI/OMOP CDM as the system’s data model. The system’s name is Interleave: https://github.com/NUBIC/interleave. It is released under a MIT license.
Interleave plans to layer the following features on top of the OHDSI/OMOP CDM:
- Multi-tenant housing of registries.
- Enrichment of the CDM to include protected health information fields.
- Registry-scoped configuration of datapoints and the relationship between datapoints. Dynamic display of datapoints per registry.
- Datapoint restriction of the list of possible values of CDM concept ID values.
- Provenance tracking per imported standardized CDM clinical entity back to source system rows.
- Support for the incremental load of data from multiple outside source systems.
- A user interface to allow for the creation ‘ex nihlo’ of standardized CDM clinical entities.
- A user interface to allow for the override of externally imported standardized CDM clinical entities.
I have done prior work on NLP-aided assisted chart abstraction systems and hope to be able to apply some of my ideas to the CDM. I also have a great interest in helping the OHDSI community converge on best practices for placing oncology data within the CDM.