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Craig,
I am Qin Ryan, a new member of OHDSI, introduced by Dr. Ana Szarfman. I am a hematologist/oncologist who works at FDA reviewing efficacy and safety on new therapies. It will be my honor to contribute to ACE-COVID 19 work stream. Presently, I am having some issues with the OHDSI web site to join the discussion and meeting. Please let me know how I can navigate through and contribute?
Thank you very much!
Qin
Please send an email to ohdsi-support@mi-erasmusmc.nl
I am Qin Ryan, a new member of OHDSI, introduced by Dr. Ana Szarfman. I am a hematologist/oncologist who works at FDA reviewing efficacy and safety on new therapies. It will be my honor to contribute to ACE-COVID 19 work stream. Presently, I am having some issues with the OHDSI web site to join the discussion and meeting. I am still trying to iron out some technical issues in joining Microsoft team meetings. Please let me know how I can work through the system and contribute? Thanks!
Hi Jeremy, thank you for the information, I was just reading about it! Great! I will loop you in. C
Hi, Everyone.
I wanted to reach out to this group about potential for collaboration. Iām the PI on a large, patient-centric outcomes registry called BEAT19: Behvavior, Environment, and Treatments for COVID19. The study web site is beat19.org. We received IRB-approval a bit over a week ago and are already enrolling and collecting longitudinal data on people with known or suspected COVID-19, as well as anyone else who wants to join. The goal is to understand the time course of symptoms development in relation to behavioral, environment factors and medical and medication-associated modifiers. This was a rapidly moving and primarily volunteer effort and we intend to make the de-identified data available to researchers. More details at the Web site. Let me know if you would like to help or collaborate.
Be safe and be well!
Mark
Thank you very much for the wonderful opening message and information. Hi, my name is Bob Ryan and I was introduced by Drs. Ana Szarfman and Qin Ryan. I am a biochemist, human molecular geneticist and researcher by training. I was primarily a bench scientist for many years, yet often working on patient samples and connected through bench to bedside means. A few years ago, as President and CEO of a public company, I helped rescue several companies and enable a new pancreatic cancer treatment to be moved forward. Iām extremely interested in the COVID-19 issue, particularly in regard to potential predictions of infection, recovery, death, and connections to treatments. Iām especially interested in providing accurate, boiled-down, and valuable actual and predictive information that can be understood by the general public.
Cheers,
Bob
Robert F. Ryan, MS, EMBA, PhD
See further details&developments in this Forum post:
Cheers,
Chiara
Dear Patrick,
Let us join forces to fight the coronavirus epidemic.
Charles Auffray
President
European Institute for Systems Biology and Medicine (EISBM)
Hi,
I am an MD/PhD student in biomedical informatics at Brown University. While our data sources arenāt currently on the OMOP CDM we are in the process of aggregating a COVID-19 dataset for the state of Rhode Island. Given the time-sensitive nature of these efforts, would it be possible to start a subgroup that could help potential collaborators onboard COVID datasets? In particular, it would be helpful if we could prioritize data elements that have been shown to be promising based on the preliminary study-a-thon results.
Best,
Aaron
Hi @aeisman,
This is great - thank you for reaching out! Please feel free to ping me (gregory.klebanov@odysseusinc.com) and @krfeeney and we can all discuss how we can help
We currently have 100+ studies created and 25 running COVID-19 studies. We are exploring how to best standardize the data in those studies and Iād love to better understand how we can apply the amazing work thatās being done here to prospectively collected datasets.
Best wishes,
Derk Arts, MD PhD
CEO Castor EDC
Hi Aaron,
I was working with Dr. Gregory Jay, Nicholas Asselin, and a few others on setting up an OMOP warehouse for the stateās emergency medical service (EMS) linked to Rhode Island Hospitalās EHR data in 2018. You can give me a call or contact me at mkwong@tuftsmedicalcenter.org if this might help what you are doing.
Hi,
Iām a research fellow at School of Public Health and Community Medicine at UNSW Sydney working with @TengLiaw. If possible, I would like to contribute to the phenotyping and characterisation studies. My email is z3339253@unsw.edu.au.
Thanks,
Jitendra