@Christian_Reich further to your points above. Am right in thinking that the following 2 assumptions should be followed in OHDSI:
- everything must be mapped to a “standard” code
- race should/must be mapped to a concept that falls in the “race” domain.
At present there are only 50 codes that are standard race codes (the ones from the CDC). Unfortunately, it isn’t possible to create a useful mapping to these in the UK. Most would have to be mapped to “European”, which wouldn’t be granular enough for our needs. I note the full CDC source (many of which are non-standard) would probably suffice. Although it might be of interest to know some of the CDC terms are a little culturally insensitive for us here in the UK.
If you were to change the SNOMED UK census 2011 codes from “condition” to “race”, I assume they would still not be considered “standard”? If so, and the CDC codes remain standard, how best do you think we should proceed for a UK OHDSI instance? I suspect it would be best to map to standard codes where we can, and use 0 where a direct mapping isn’t possible, and then rely on race_source_value for analytical needs?
Thank you in advance for you help as I get my hands dirty with OHDSI here in the UK!