It's the OHDSI Vocabulary group, which essentially is the Odysseus team and myself. We get a lot of support from the community through contributions like this one.
No tool. Because we are not developing terminologies:
- We "steal" them, ie. we incorporate existing vocabularies from external sources (mostly public, some private).
- For the mappings and other relationships: We also try to rely as much as possible on external sources, but for these we need more exceptions.
Exceptions from rule 1): RxNorm Extension and the various internal OMOP vocabularies, like domains, concept classes, etc.
Exceptions from rule 2): The ICDs to SNOMED, MedDRA to SNOMED, various procedure Concepts to SNOMED (even though that needs a big revision), and various drug vocabularies to RxNorm and RxNorm Extension.
We are currently not mapping Measurements, Devices, Observations and Specimen, because either there are no widely accepted generic terminologies for these to begin with, or because it is unwieldy and the use cases supporting it deprioritize these (e.g. Devices).
Documentation: Only in-code documentation on Github. Nothing for the faint-hearted.